Report warns doctors snub families of the terminally ill amid growing use of 'death pathway'
By Daniel Martin
Last updated at 12:49 AM on 15th September 2009
More than a quarter of families are not told when life support is withdrawn from terminally-ill loved ones, a report has found.
Experts warn that growing use of a controversial 'death pathway' is seeing some patients killed off prematurely.
They say the system can lead to 'backdoor euthanasia' by encouraging doctors to deny fluids and drugs to those deemed to be in their final throes.
Controversial: About 20,000 patients are thought to die each year on the 'death pathway', where doctors can withdraw assistance
Under the so-called Liverpool Care Pathway, which is used across the NHS and in many nursing homes, doctors can withdraw assistance from the terminally ill and sedate them continuously until death.
About 20,000 patients are thought to die this way each year.
But a national audit of the scheme found that 28 per cent of relatives were not informed that a loved one had been placed on the pathway.
Researchers from the Royal College of Physicians and the Marie Curie Palliative Care Institute in Liverpool obtained details of almost 4,000 patients treated on the scheme last year.
Thirty-nine per cent suffered from cancer, while others had conditions such as pneumonia, stroke, organ failure and dementia. The average age of patients was 81 and they were typically on the pathway for 33 hours before death.
More than a third were given sedatives, and four out of five either did not need intravenous medication or fluids, or had them withdrawn. The study found that 76 per cent of families were told that a loved one 'had entered the dying phase'.
The audit - which examined practices at 155 hospitals in England - concluded that there was room for improvement in keeping relatives informed.
Peter Millard, emeritus professor of geriatrics at the University of London, said: 'The risk as this is rolled out across the country is that elderly people with chronic conditions like Parkinson's or respiratory disorders may be dismissed as dying when they could still live for some time.
Guidelines: Senior doctors must assess patients to see whether they are close to death
'If patients tell their doctors that they wish to die at home, that shouldn't be taken as an excuse not to treat them in hospital if their condition deteriorates but they still might recover with proper care.
'We're not criticising good hospices. It's rolling out this tick-box practice into normal hospitals and nursing homes that is the problem.
'Discussions about the future of patients are being bypassed; the supportive nature of hospitals has gone. We are hearing complaints from all round the country.
'Governments have got rid of respite care and geriatric wards, so we're left with a crisis. The Government has said let's develop a service to help people die at home - what they should be doing is helping them live. Only when death is unavoidable should you start withdrawing treatment.
'The problem is that there isn't enough discussion between doctors and patients and their relatives. Nobody is talking to them.'
The 'National Care of the Dying' audit also found that less than half of all terminally-ill patients and their relatives are offered religious or spiritual support.
And a quarter of doctors in hospitals are not properly trained in dealing with the dying.
Professor John Ellersaw, of the Marie Curie institute, said: 'That three quarters of relatives and carers are now told what's going on is encouraging, but we don't know what's happening in the remaining cases.'
The audit also said that hospitals and care homes that routinely put patients under deep sedation should review their practices.
The care pathway, which was developed by a Liverpool hospice, has spread to 300 hospitals and 560 care homes following its adoption in 2004 by rationing watchdog NICE.
Under the guidelines, a senior doctor should assess a patient to see whether they are close to death. Signs can include losing consciousness or having difficulty swallowing.
But experts warn that these symptoms can be related to other conditions. Patients can become semi-conscious after having morphine-injections, for example.
Earlier this month, a group of experts wrote to a national newspaper, saying the pathway was ending the lives of those who may have had months left in them.
They said it might not suit a busy hospital, where vital signs of recovery could often be missed.
After the decision has been made to put a patient on the pathway, doctors are advised to consider removing medication and drips.
The guidelines recommend that patients' conditions should be assessed at least every four hours. If they show improvement they should be taken off the pathway.
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